.............................................."An International Alliance of Support and Science"
Mark your calendar
Make a note of these significant upcoming events.
Jan. 24 Start of Phelan Lucky fund-raising campaign. Runs through Feb. 14
Feb. 6 Jackson's Trivia Night hosted by PMS parents the Goldsmiths
Feb. 7 Request a Rare Disease Day proclamation from your elected officials. Contact Kristen Angell at email@example.com
Feb. 10 Register for Rare Diesease Week on Capitol Hill. #RareDiseaseDay
Feb. 14 End of Phelan Lucky fund-raising campaign
Feb. 20 Take a few minutes to look over the valuable family support and medical information under the Resources link in the menu list on the left side of this page
Feb. 28 Surprise Phelan-McDermid Syndrome Foundation event in Australia. $60 per person. To buy tickets email Megan on firstname.lastname@example.org
Feb. 29 Ninth annual World Rare Disease Day: Join us in making the voices of rare diseases heard
Feb. 29-March 3 Rare Disease Week on Capitol Hill, Washington, D.C. #RareDiseaseDay
March 9-12 3rd international congress on research of rare and orphan diseases, Barcelona, Spain
March 14-15 Patients as Partners, Philadelphia, Pennsylvania. PMS parent Megan O'Boyle attending. Info here.
April National Autism Awareness Month
April 2 World Autism Awareness Day
April 15 Did you update your profile in the PMS International Registry? Do it before the end of the year
April 21-22 World Orphan Drug Congress USA, Hilton, Washington, Washington, D.C.
May Mental Health Awareness Month
May 10 Shopping online for an upcoming graduation gift? Shop iGive.com or Amazon Smiles and choose Phelan-McDermid Syndrome Foundation as your charity of choice. Find out more here
May 11-14 IMFAR 2016 Baltimore Convention Center, Baltimore, Maryland. PMS parent and Research Support Committee Chair Geraldine Bliss attending
May 14 PMSF UK / High Five joint North West Family Day. Martin Mere Wetland Center. 10 am. Contact email@example.com.
May 20 Not sure if you want to become a registered member of the PMS Foundation? It's free, and there are lots of benefits? Follow the Membership link in the menu list on the left side of this page
July 20-23, 2016 PMSF International Conference, Caribe Royale Hotel and Conference Center, Orlando, Florida
September World Alzheimer's Month
Sept. 21 World Alzheimer's Day
October Learning Disabilities Awareness Month
Nov. 15-17 World Orphan Drug Congress Europe, Sheraton Brussel Hotel, Brussels, Belgium