24 Hour Giving Challenge was a great success

For the second year in a row PMSF finished at the top of the Giving Challenge! Did you know that no nonprofit has ever done that twice in a row?

It was very exciting and nerve-wracking at the last half hour, but PMSF prevailed, due to the generous support of family and friends of the Foundation.  Did you know that 14% of our donors gave within the first 19 minutes of the event and 31 donors gave almost $5,000 in the last 10 minutes of the event?  This has positioned us well for matching dollars and put us over the top to take first place!

Our final numbers so far are as follows:  Leaderboard donations $73,960.00, PayPal Donations, 1,335.00, Individual Matching Funds, 2,250.00.

Incentive Grants we have received: $2,000.00 for most donations from foreign countries, $4,000.00 for most profile clicks, $15,000.00 for 2nd place for most unique donors.  Total Received to Date:  $98,545.00!  We  are still expecting 1:1 Matching dollars to come in as well as other possible incentive grants.  We will keep you posted as our numbers are still climbing!

We want to thank all of you who sent the beautiful pictures of your children, which were included in our Giving Challenge Facebook thumbnail graphic campaign.  Did you know that over 90 families participated?  Some of these graphics were included in the YouTube video made specifically for the 24 Hour Giving Challenge.  If you haven't watched it yet, please click the link below as it is a touching video and shows how kids with PMS challenge rare disease every day. https://www.youtube.com/watch?v=TNmc2K0d2i0 Did you know this video was viewed by 2,920 people and shared from the Giving Partner’s Facebook page 64 times?  Talk about raising awareness!

We will be reporting on the final numbers and incentive grants awarded as they are confirmed by the Community Foundation of Sarasota County. This could take several weeks as nearly 400 nonprofits in our area participated in this Challenge.  Did I mention that no nonprofit has ever won it twice in a row?

We thank you for your phone calls (even the one at 5 a.m. EST), emails and words of support. The staff and I are so blessed to be a part of this wonderful organization.  In the weeks leading up to the 24 Hour Giving Challenge and during the 24 hours itself PMS families and friends were engaged on the PMSF Facebook pages and Twitter in real time.  We encourage all of our members to join Facebook and Twitter as they are great communication tools between the Office Staff, Board of Directors and PMSF membership.

Once again, the Board of Directors and I want to thank all who participated and for engaging your friends and families in this great campaign to raise over $98,545 in 24 hours for PMSF!  You all are truly remarkable!


Barbara Cruz

PMSF Executive Director

Phelan Lucky in 50 States and Internationally

By Jen Randolph

Our family is feelin' really lucky.

We set out to sell a few T-shirts for a local St. Patrick's Day event and it quickly caused a national stir in the special needs community.

The shirts were intended to raise awareness for the Phelan-McDermid Syndrome Foundation and also raise some money. We thought it would be a cute idea if we all wore matching T-shirts Saturday, March 15, for the St. Patrick's Day Loop in Wilmington, Del., and also have a cute shirt for the kids to wear to school on St. Patrick's Day, March 17.

After brainstorming, we came up with the idea of the phrase PHELAN LUCKY, which seemed quite appropriate given our gratitude toward the Foundation for all that they do for our family, the upcoming holiday and of course, Dr. Katy Phelan's love of the Boston Celtics.
Dr. Katy Phelan and her Phelan Lucky T-shirt, worn in Louisiana.

At first the idea was simple, sell a couple of shirts to our friends and family and make a couple hundred dollars while we were at it. However, the shirts, designed by our good friend Andy Cruz at House Industries, proved to be a hot commodity. Locally, our friends and family thought they were great so I put it on Facebook. It kind of exploded after that.

At the end of our three-week campaign on booster.com we sold 488 shirts, got at least one shirt in each of the 50 states (four made it to Shanghai, China), and raised $10,950.00 for the foundation. As time was running out on the campaign we still did not have anyone buying the shirts in six states. So, my father's friend kicked in to help. He cold-called families in those states and found people to buy the shirts so that we would meet our goal of making sure at least one person had a PHELAN LUCKY shirt in every state! Thank you so much!

Today, I am still receiving requests to order the shirts. Unfortunately, the campaign is over, but due to the high demand, I feel confident that Jack's PHELAN LUCKY campaign will become an annual fundraiser.

Thank you to all of the families who supported us by buying shirts and sharing with your circle of friends. For those of you who missed out, I promise to remind you next year.
The Randolphs are certainly PHELAN LUCKY to be associated with such an incredible group!

Nick Assendelft contributed to this story.


Last Updated on Friday, 16 May 2014 10:55
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