The Phelan Mc-Dermid Syndrome Foundation welcomes your questions, comments, and suggestions. 
Here's how to contact us:

Mail To:

Attn: Sue Lomas, President

Phelan-McDermid Syndrome Foundation
P.O. Box 1016
Venice, Florida 34284

Or send an e-mail to  This e-mail address is being protected from spambots. You need JavaScript enabled to view it (administrative assistant)

Phone: 1-941-485-8000

Fax:     1-941-485-8000

To contact one of our regional reps, please click here.